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A workshop for parents living in the London area
This workshop is intended to help families of young people with Down’s syndrome plan ahead for adult life. It is aimed at parents / carers of young people between the ages of 12 and 22.
If you are asking questions such as …
• What might adult life look like for a young person with Down’s syndrome?
• What are the options for education and training once my son or daughter leaves school?
• How will the new SEN reforms affect young people?
• Who makes decisions once young people become adults? Can parents still be involved?
• What help is available to help my son or daughter plan for independent living?
… then this workshop is for you.
The programme for the day:
• Introduction: What does it mean to be an adult? Case studies of adults with Down’s syndrome.
• Learning for life: This session will look at further education and training. It will include details of the new system of Education, Health and Care Plans from September 2014
• Lunch and sharing information
• Making choices and increasing independence: This session will include information on the Mental Capacity Act and how it affects young adults with learning disabilities and their families
• Support for daily life: This session will focus on adult community care assessments and plans – how to prepare for the assessment and get what your son or daughter needs. It will include changes to legislation affecting young people entering adulthood.
The course is for?
Parents and carers of young people with Down’s syndrome aged 12-22. Because of the funding conditions you must live within Greater London.
Date / Time
Saturday 17 May 2014 10am – 3pm
Location of course
Langdon Down Centre, 2a Langdon Park, Teddington TW11 9PS
Vanda Ridley and Lesley Black
Free. The DSA has obtained funding to run this free workshop for parents of young people with Down’s syndrome living in Greater London.
How to book
For more information or to reserve a place:
• email firstname.lastname@example.org with the subject line Transition Workshop and include your name, address, email address, telephone number and the age of your son or daughter
• call – 0333 1212 300
• Spaces are limited so book now!
By Paul Zanon
When Kevin Kilbane contacted the Down’s Syndrome Association in 2005 he was in need of a great deal of information and support regarding something he had little knowledge of – being a parent of a daughter with Down’s syndrome. Within literally a few weeks of his first interactions with the DSA he agreed to become a patron and has ever since became an incredible supporter of the DSA on a number of fronts, including fundraising, numerous public appearances at DSA events throughout the UK and is also now a patron for the DSActive programme (sports for people with Down’s syndrome).
In 2013, Kevin raised the bar to another level of support. Apart from running the London Marathon for the DSA raising a sterling fundraising total, he also launched his autobiography KILLA (available on Amazon and all good book shops!). The book was ghost written by acclaimed author and DSA parent member Andy Merriman, and is a great story about a very endearing man who also happens to be Ireland’s third most capped player of all time, with 110 appearances for his country, including an incredible 66 consecutive matches. Kevin’s presence on UK soil wasn’t bad either, playing alongside the likes of Wayne Rooney at Everton and also donning the studs for a number of other clubs such as West Bromwich Albion, Wigan and Hull before retiring in 2012. The book takes you through Kevin’s journey as a child of Irish immigrants growing up in a tough region in Lancashire, through his entire football career and his emotions of becoming a parent of a child with Down’s syndrome. Some roller coaster episodes which will give you a platform to share empathy and pride.
The royalties of the book are split evenly between the DSA and DS Ireland, so please jump online or go to your local bookshop and purchase a copy!
See: Amazon | DSA Website News
Professor Jeremy Turk came along to DSA National Office on Saturday 5 April to talk to parents about the use of medication in supporting behaviour. There was a good turnout of parents with both young and adult sons and daughters. Professor Turk’s presentation, followed by questions and answers, was very well received.
Professor Turk talked about what conditions medication might be useful for whilst emphasizing that medication should never be the first step in tackling a behaviour issue. Professor Turk stressed that it should only be considered after psychological, educational, family and social approaches have been tried first. During his presentation Professor Turk revisited the point several times that medication should be prescribed as part of a multidisciplinary approach (e.g. with other services such as social services, education, psychology also providing support). Professor Turk also sought to dispel some of the concerns held around medication by talking about the targeted and refined nature of the medications now available compared to the ‘blunt instruments’ such as Valium which were widely used in the past.
One of the major benefits of the ASC/DS meetings is for parents to have the chance to swap experiences and tips. There were numerous lively discussions and much information sharing over lunch at the refectory table in our wonderful newly refurbished basement area. It was obvious from some of the conversations taking place that a dose of humour coupled with inventiveness played a big part in helping parents to deal with some challenging situations.
After lunch DSA staff asked parents to share their experiences of supporting positive behaviour in their children. Some parents had bought along some communication resources to the meeting that had helped their children to make choices and to communicate their wishes.
The next ASC/DS meeting will be on Saturday 4 October where Dr Parr and Dr Newall will be talking about their research looking at:
the range of ability and numbers of those children with Down’s syndrome who also have atypical behaviour;
whether screening between the ages of three and five can indicate ASD in children with Down’s syndrome.
Please email email@example.com if you would like to attend.
With summer just around the corner, we realise this may be a strange request but we NEED YOUR HELP!
We are looking for Christmas card designs for our 2014 campaign and would love for you to send in your designs. They can be of anything festive you want – Christmas trees, Santa Claus or Snowmen, as long as they are really bright and colourful. Here are just some of our past winners to give you an idea of the kind of thing we’re looking for. It could be that you drew something over the Christmas period that you want to send in or you can design a brand new image for us.
Please send your designs:
by post to: Alexa Dizon, Down’s Syndrome Association, Langdon Down Centre, 2a Langdon Park, Teddington, TW11 9PS
by email : firstname.lastname@example.org
We’ll put our top five up online for our members and supporters to vote for their winning design which will be made into a Christmas card and be sold as the official Down’s Syndrome Association card. So you could be seeing your design on mantelpieces all over the country!
All designs to be submitted by the deadline of 1 May 2014.
My name is James Hobson, I am a photography student in my final year of study at Middlesex University, London.
I am currently developing a project which is focused on positively raising awareness of Down’s syndrome.
I started the project over a year ago with my good friend David who has Down’s syndrome and went to mainstream school with me. I have since spent the last few months developing my work and expanding the series with new people I have managed to contact.
The series I am producing is of people in their daily environments so either at home, work or participating in social activities such as sport, so I am able to capture images with the subject relaxed and comfortable in the setting. I am based in the North East of England and London and would be looking for subjects in either of these locations.
I would be very grateful of any opportunity to meet with anyone who would consider being involved in the work which is to be exhibited this June at The Old Truman Brewery on Brick Lane as part of my degree exhibition show.
I am happy to offer copies of the work once produced if people would like prints as a thank you for being involved in the work. I look forward to hearing from you.
Please contact me by email or telephone: email@example.com | 07921 260055
By Kate Powell, Down 2 Earth Editor and Amy Deakin, Information Officer
Have you heard of Down 2 Earth Magazine?