In the UK, The Down’s Syndrome Association (DSA) started the first pilots for the POSEIDON Research Project. Pilots will be underway soon in German and Norway.
The Test Users – People with Down’s syndrome (Primary Users) and Parents and Carers (Secondary Users) are now testing the new POSEIDON apps. To assist in the research and development of the apps, the Test Users will give us their feedback so that the POSEIDON Developers can develop the apps even more.
Dan is one of the testers. Dan said he is now looking forward to ‘trying out the apps for real’ and telling the POSEIDON Project Team what he thinks about the apps.
Alexandra, a POSEIDON Research Assistant from Middlesex University working with Raffaella, one of the Secondary Users.
To find out more about the POSEIDON Research Project, contact Bridget Hammerton.
The Down’s Syndrome Association (DSA) has received £85,100 from the Heritage Lottery Fund (HLF) for its exciting project: ‘Normansfield – Protecting a Theatrical Past’.
The HLF’s grant means that vital building works can begin to protect the rare, Victorian Grade II* listed theatre and its remarkable collection of original, hand painted scenery. The scenery, which has no equal anywhere else in Britain, is extraordinarily complete with more than 80 flats, 18 borders, 5 painted cloths and many individual pieces.
The funding will also allow the creation of a fully catalogued, digital archive of the Victorian scenery to create a ‘virtual theatre’ which will be available at the centre and on-line. The ‘virtual theatre’ will enable a schools and further education programme to explore this important collection. It will also be accessible to members of the public to learn more about the fascinating life of this beautiful theatre.
The theatre was built in 1879 by Dr John Langdon Down as part of Normansfield which was started as a home for people with learning disabilities in 1868. Normansfield (now the Langdon Down Centre) is widely regarded as the ‘spiritual home’ of Down’s Syndrome. This is a rare and beautiful example of a late Victorian, private theatre which is considered to be of great architectural and historic importance. The stage still contains the original working flaps and is one of only two working theatres with this in place today. The scenery was expertly cleaned and conserved in 2002/2003 and this HLF funding will ensure that the conditions in which the scenery is stored are not at risk of flooding and damp.
Carol Boys, the Chief Executive of the DSA (owners of the Normansfield Theatre) says:
“We are delighted to have received the support from the Heritage Lottery Fund. This award will ensure that our Victorian scenery is further protected and will be accessed by the public digitally and through our educational programme”.
Stuart Hobley, Head of Heritage Lottery Fund London says:
“Thanks to National Lottery players, this unique collection of theatrical scenery can be saved from deterioration. The new digital archive will allow even more people to discover and cherish the history of Victorian Normansfield and its theatre.”
Learn more about the Langdon Down Centre…
Defeat Dementia in Down’s Syndrome Research Projects
Cambridge University Down’s Syndrome Research Group will be at the Langdon Down Centre
1pm – 5pm | 26 July 2015 Please drop in during the afternoon.
You are invited to come and meet the team:
- Find out about their research and learn about the brain
- Chat to our friendly research group
- See what it is like to take part in research
There will also be refreshments and some fun activities.
If you would like to attend, please RSVP to firstname.lastname@example.org or by phoning 0333 12 12 300 to let us know how many people will be attending with you.
The Langdon Down Centre, 2A Langdon Park, Teddington, Middlesex, TW11 9PS.
Telephone: 0333 1212 300 | Email: email@example.com
Cambridge Intellectual and Developmental Disabilities Research Group are conducting a study based in partnership with the Down’s Syndrome Association (DSA) and the Wolfson Brain Imaging Centre (WIBC) Cambridge, to investigate the risk of dementia in people with Down’s syndrome (DS).
This four year study is funded by the Medical Research Council (MRC). We believe that a chemical (protein) in the brain called beta amyloid may be a key factor in causing dementia of the Alzheimer’s type, and that people with DS may be more vulnerable to this type of dementia as they have more of this protein in their brains (the gene for the protein is on chromosome 21, which is inherited in triplicate in people with Down’s syndrome). If excess beta amyloid is found to be an important factor, then medications being developed to reduce beta amyloid deposition in the brain could possibly prevent dementia developing. This study will use new brain scanning techniques to look at the amount of beta amyloid in the brain and whether it is associated with brain changes and the symptoms of dementia.
If you have DS or know someone with DS over the age of 40, who might be interested to hear more about this study, please contact either Tiina or Liam by email on the details below.
To find out more please contact the research team directly. Telephone: 01223 746127 or visit www.dementiainDS.com